Intermountain Healing Hearts (IHH), a new support group formed in
September, 2007 for families of children or adults with congenital heart defects
(CHD's) and heart disease. Most of our members live in the Intermountain West
(Idaho, Nevada, Wyoming, Montana, and Utah) and are seen through the
cardiology clinic located in Primary Children's Medical Center (PCMC) in Salt
Lake City, Utah. Intermountain Healing Hearts offer resources and a caring
support network as families find answers and move forward to find healing and
hope.
Outreach & Visiting: IHH connects families in crisis with other families that have
survived the shock of learning their child has a heart defect, navigated the
maze of medical decisions, understood procedures, and mapped out a plan for
the future.
Accredited volunteers make on-site visits to parents whose children have been
diagnosed with a heart defect(s) or are undergoing treatment. Outreach
packets contain health information in either brochures or book form, if needed
an extended hospital stay care bag is also given.
Internet and Telephone Visiting: Parents receive support by communicating
with other members by phone and also have access to the IHH Yahoo Group.
Group Meetings: Support group meetings help parents or older patients know
that they are not alone and that there is hope. After all, according to the
American Heart Association there are more than 1 million people living in the US
today that have a CHD(s). Members listen, share their experiences, and
discuss issues that impact the family.
Social Event: IHH encourage social events to bring members together to
celebrate a theme or offer camaraderie among members and supporters.
Bereavement: In addition to what IHH offers for those families that have
children living with CHD's, IHH also offers a on-line Yahoo Group, support group
meetings and activities for those Angel Families that are dealing or have dealt
with the passing of their loved one. Our grief can feel overwhelming at
times...our hearts may feel shattered and broken. We may feel the need to
share our grief with others, in a nonjudgmental, open forum. Perhaps we would
like to share memories of the one we love who has died. Or maybe we just need
reassurance that our tears, our pain, our anger, and any other feeling that we
may experience in relation to our grief is okay. This group offers a way to share
our thoughts, experiences and feelings in order to find guidance, direction
and/or advice.
Organization: IHH is 100% volunteer run organization. There are no paid
positions, though an elected Board of Directors help in overseeing the
organization. 100% of the donations go directly to help the organization in
maintaining and producing educational supplements, outreach packets, care
bags, and costs associated with holding support group meetings and social
events that help bring parents and families together.
Non-Profit Status: Intermountain Healing Heart is recognized as an official
501(c)3 Non-Profit Organization, IHH achieved the 501(c)3 non-profit status
August 2008. For more information, please contact Carolyn Quigley,
carolyn@intermountainhealinghearts.org
Donations: IHH is approved from the State of Utah to actively solicit for
donations. Please see our donation page to donate through our PayPal account
that goes to the organization. Each dollar counts in helping maintain the
organization and our ability to reach out to help those in need.
Future: Eventually, Intermountain Healing Hearts in the future hopes to offer
monetary grants to families that are enduring financial hardships due to
extended hospital stays and also help in funding on-going CHD related
research.
September, 2007 for families of children or adults with congenital heart defects
(CHD's) and heart disease. Most of our members live in the Intermountain West
(Idaho, Nevada, Wyoming, Montana, and Utah) and are seen through the
cardiology clinic located in Primary Children's Medical Center (PCMC) in Salt
Lake City, Utah. Intermountain Healing Hearts offer resources and a caring
support network as families find answers and move forward to find healing and
hope.
Outreach & Visiting: IHH connects families in crisis with other families that have
survived the shock of learning their child has a heart defect, navigated the
maze of medical decisions, understood procedures, and mapped out a plan for
the future.
Accredited volunteers make on-site visits to parents whose children have been
diagnosed with a heart defect(s) or are undergoing treatment. Outreach
packets contain health information in either brochures or book form, if needed
an extended hospital stay care bag is also given.
Internet and Telephone Visiting: Parents receive support by communicating
with other members by phone and also have access to the IHH Yahoo Group.
Group Meetings: Support group meetings help parents or older patients know
that they are not alone and that there is hope. After all, according to the
American Heart Association there are more than 1 million people living in the US
today that have a CHD(s). Members listen, share their experiences, and
discuss issues that impact the family.
Social Event: IHH encourage social events to bring members together to
celebrate a theme or offer camaraderie among members and supporters.
Bereavement: In addition to what IHH offers for those families that have
children living with CHD's, IHH also offers a on-line Yahoo Group, support group
meetings and activities for those Angel Families that are dealing or have dealt
with the passing of their loved one. Our grief can feel overwhelming at
times...our hearts may feel shattered and broken. We may feel the need to
share our grief with others, in a nonjudgmental, open forum. Perhaps we would
like to share memories of the one we love who has died. Or maybe we just need
reassurance that our tears, our pain, our anger, and any other feeling that we
may experience in relation to our grief is okay. This group offers a way to share
our thoughts, experiences and feelings in order to find guidance, direction
and/or advice.
Organization: IHH is 100% volunteer run organization. There are no paid
positions, though an elected Board of Directors help in overseeing the
organization. 100% of the donations go directly to help the organization in
maintaining and producing educational supplements, outreach packets, care
bags, and costs associated with holding support group meetings and social
events that help bring parents and families together.
Non-Profit Status: Intermountain Healing Heart is recognized as an official
501(c)3 Non-Profit Organization, IHH achieved the 501(c)3 non-profit status
August 2008. For more information, please contact Carolyn Quigley,
carolyn@intermountainhealinghearts.org
Donations: IHH is approved from the State of Utah to actively solicit for
donations. Please see our donation page to donate through our PayPal account
that goes to the organization. Each dollar counts in helping maintain the
organization and our ability to reach out to help those in need.
Future: Eventually, Intermountain Healing Hearts in the future hopes to offer
monetary grants to families that are enduring financial hardships due to
extended hospital stays and also help in funding on-going CHD related
research.
Intermountain Healing Hearts PO Box 581306, Salt Lake City, UT 84158-1306 USA Toll Free: (800) 397-1174 info@intermountainhealinghearts. org |
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